So do you see it? The uveitis I mean.Look into those big beautiful blue eyes.They are the most beautiful eyes. I am not quite sure who he got them from but not Mom or Dad we both have brown eyes. Possibly Grandma or Pepere. You don't see it do you? That is because the uveitis is invisable! There are no signs. Pretty scary for a disease is the third leading cause of blindness in this world. Over the past couple of days it has been sinking in how deep we are into this juvenile arthritis thing.
How is it possible that he has JRA? How is it that he has now gotten uveitis? Uveitis is so rare that only about 38 people out of 100,000 have it. Out of those 38 10% are children and even less than that are boys! So why does Jacob have it?
I will never know the answer to those questions. I guess there has to be someone in those statistics. Well, we are here and we now begin the fight to save his vision. It is a very scary thought that 10% of kids will go blind with this disease despite treatment. Despite those odds I have faith that this will not happen to him. We are seeing the top doctor for uveitis in the country. I am very unsure where this journey is going to take us. I do know that we are possibly in it for quite a while.
Next week we see the rheumatologist to discuss what treatment is next. More medications. Which ones I don't know.
10 Years of HOPE
2 days ago