Sunday, November 29, 2009

Gabrielle's Vision

Love this video, it says it all. Please view to have a better understanding of UVEITIS

There are 50-100,000 children in the United States with JRA , 10% of these children will develop UVEITIS.

5,000-10,000 kids have uveitis in the United States, and to this day, still 10% of these children will go blind.

We need to spread awareness of this Chronic disease. A cure must be found. We need to save our children's sight.

Saturday, November 28, 2009

doctor visits are getting a little tiring

Jacob was back at the doctor's yesterday. For what I think is a sinus infection that has been lingering. He had it a month ago when he was being treated for strep throat. The penicillin he was given then didn't help, and he progressively got worse. He is now on Augmentin and a nasal spray, which hopefully will finally clear it. I have noticed when he has been sick with somthing it seems to linger. I don't know if it is from the JRA meds or not. The Humira does say that it cause respiratory and sinus problems. So who knows. Jacob's rhematologist had told me a month ago that whenever he is on antibiotics he is to hold the JRA meds. Just a month ago we held them for almost two weeks for strep throat. Now he is on Augmentin for 10 days. Off his meds again. I am very nervous that he has been off the meds so much lately. It is a scary thought that this can start a flare. Especially his eyes!
I sent his rheumatologist an email to be sure he should remain off the JRA meds for the next two weeks. Hopefully I will hear from her soon. I posted a few pics of the boys at the doctors. Always a fun time with 3 boys in the same small 6x6 room.

Sunday, November 8, 2009

eye appointment

I forgot to post the other day that Jacob had his eye appointment. We went this past Wednesday. What a long appointment! We left for Cambridge at 8:30, got there for a 9:45 appointment and were not seen until almost 1:00! The wait was a little excessive I would have to say! Thankfully Jacob did well with the appointment. His eyes are still clear. He has been off his meds again for a little while because he was sick with a fever and diagnosed with strep. Anytime he is on antibiotics were are told to have him stop his JRA meds. When he first started getting sick, I think he may of started to flare his arthritis. His knees were extremely stiff. Now that the strep throat is gone he is feeling better.

We return in six weeks again for his follow up.