I know it has been a while since I updated the blog. Everything has been going well with Jacob. At the last rheumatology visit in April we decided that we would try to wean down on Jacob's Humira. He has been on Humira for 4 years now. (time flies!) The rheumatologist and I discussed weaning him down slowly. We went from giving the Humira every two weeks to every three weeks. Jacob seemed to be okay with that until about mid May, when he decided he was done with the med. He flat out refused to let me do the injection. I don't know if this is what many families go through when the kids hit the teen years. I emailed his rheumatologist and she said that we can give it a try stopping it. Jacob had the understanding that he may need to go back on this if his joints started to get inflamed again. We just saw the rheumatologist 2 weeks ago. Overall he is doing great! The only thing that showed was both of his second toes were swollen. They xrayed his feet to be sure that there was no bone damage happening. Thankfully there wasn't! The doctor gave Jacob 5 options. (I know he likes to have some control in deciding his treatment) She said we can watch the joints a little longer and see what happens, he can start Meloxicam (an NSAID), Start MTX, start Humira, or restart both Humira and MTX. Jacob chose "option 2". So he started on the Meloxicam. We are to return in another month to the rheum because she wants to watch him closely. I think the appointment is the first week of September. We also have an appointment the end of August for his eyes. I will be very nervous for this appointment because he will of been of the Humira for 3 months. This is the longest he has been off meds while he has had uveitis. This appointment is good timing if his eyes flare we know that he has no choice to go back on the meds.
This blog is about my son Jacob. Jacob has Juvenile Arthritis. He was diagnosed soon after he turned 5. He is now 13 years old. His journey started with me noticing a limp and a swollen knee. We were referred to a pediatric rheumatologist soon after. Initially, Jacob just complained of his knee hurting and being stiff. He received cortisone injections in May of 2004 and was weaned off of the Naproxyn he was on, soon after. All was quiet with his arthritis until January of 2008 when his knee out of nowhere was swollen again. He had some problems with his fingers and ankles as well. He was started back on Naproxyn and scheduled for a eye exam. At his routine eye exam he was diagnosed with uveitis. Uveitis is a eye disease that is caused from Juvenile arthritis. Jacob sees a uveitis specialist in Cambridge, MA every 8 weeks. His eyes have been cell free since June 2008. He was treated with the combination of Methotrexate 17.5 mg and Humira 20mg every other week. He has not been on steroid eye drops since the springtime of 2008. Beginning in the summer of 2010 we began to taper the methotrexate. He began to take it bi-weekly. He was tapered off the med completely as of January 2011. His joints have remained relatively quiet. This past February 2011, he was found to have some stiffness/inflammation in his hip. He also continues to have a couple of swollen toes as well. He is pain free at the moment and continues to take only Humira for meds. Jacob is considered to have Extended Oligoarthritis. UPDATE: July 22, 2011 An MRI confirms arthritis in both hips. Humira 40mg will be given weekly. He has no pain in his hips. But is having pain in his heels. Update: December 2012 Back on "Humira. Eye flare up, knee swollen and MRI confirms again arthritis is active in his hips. Update: Feb 2013 Failed Humira. Joints and eyes flared and he isn't responding to Med. Started Remicade Feb. 1, 2013.