We just came back from the orthopedic doctor in Boston. He is in agreement with the rheumatologist that Jake needs a synovectomy. He says the MRI shows a "mass" of tissue in the knee joint. He says that he isn't totally sure on what's going on. He said it could be one of three things. First, the Juvenile arthritis causing a large amount of tissue growth in the joint, second, the JRA with pieces of cartilage floating around(there is pieces of something in the joint) this he said is seen in old people who have Rheumatoid arthritis!!, or something called Pigmented Villonodular synovitis. This condition can mimic what is going on too. This is not a very common thing at all! The doctor and the rheumatologist are very baffled on what is going on. Frankly, I am extremely worried! The doctor said as soon as he gets in there with the camera he will be able to tell exactly what it is by the looks of it. He is going to biopsy the tissue as well. So, the surgery itself will be arthroscopic and he will be on crutches for a while. He will be out of school for a week or so. Jake already told me that he isn't going to school with the crutches so hopefully he doesn't need them long! Say some prayers for us that all goes well and we finally find out what's going on! I have about had it with the "rare" diagnosis! The JRA was rare, the uveitis is oh, 38 in 100,000 people and these complications extremely rare!
Happy JA Awareness Month
1 month ago