Saturday, July 16, 2011

New update

Since I last posted Jacob has had a rheumatology appointment and an eye appointment.
The eye appointment was just this past week. I am very happy to report his eyes are still clear.
They have been clear for 3 years now! (he has a few trace cells once in the past year)
His pressure was great and there was no change in his cataracts! We do not have to return for 3 months! This is the longest we have gone between visits since his uveitis diagnosis 3 1/2 years ago.
Jacob went to the rheumatologist a couple of weeks ago. He has been still having tons of heel pain. I told the doctor that I have noticed he has changed the way he walks because of the heel pain. His thigh on the side of the heel trouble is smaller than the other side. This is happening because he has changed the way he walks! So obviously it has been bothering him more than he has let on. While we were at the JA conference both of his heels were bothering him a lot. He had such a difficult time walking around seeing the sights. I was able to get him a wheelchair while we were in the Museum. He continues to have the pain pretty bad right now. He is back on Naprosyn 500mg twice a day.
The rheumatologist also found that he is getting stiffness in his left hip still. This was noticed a few months ago and she decided it is time to have an MRI to see what's going on in there. That is scheduled next week.


Anonymous said...

Thank you for your blog. It is so helpful. My daughter (13) was just diagnosed with JRA last September. In January my son (11) was really sick for several months. I took him to so many doctors! Nobody wanted to believe how much pain he was in because there was no swelling in his joints. He ended up going to 5 different eye doctors, even mass eye and ear (at 1:00 in the morning couldn't help him). Ended up being diagnosed with scleritis by Dr. Foster and Enthesitis Related Arthritis (which IS a form of JRA) by Tufts Floating hospital. So two children
within the same year. Anyways thank you for your blog. God Bless your family.

Jacob's Mom said...

I'm sorry you are dealing with 2 children with JRA. We go to both of the same doctors. I'm sorry I am just seeing this comment now. For some reason I do not get emails for comments anymore!