Just wanted to give a quick update. Jacob just passed his 1 year mark on Remicade. He started February 1, 2013. Seems like the year went very quickly! January 22 he had his infusion and saw the rheumatologist. All is still going very well. His joints seem to be doing okay. He did have an xray of his left knee though, just to rule out an issues. His left knee has been his main issue all along. If you remember he had a synovectomy done on it when he was just 9 years old. He complains of it here and there, but nothing major. He was sick a month ago and it did stiffen, but it has been okay since. We have not heard any news on the xray, so no news is good news. The rheumatologist moved his infusions from 6 weeks to 8 weeks. I'm all for pushing it out a little longer. If his eyes or joints become an issue, we will go back to more frequent infusions. His eye appointment is a week from Wednesday. I don't plan on hearing anything other than NO CELLS". Especially since he just had his infusion. Oh one last thing, the nurses at Tufts are AMAZING! They hit the vein on the first shot.
It's just arthritis, right? |
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