Jacob's uveitis and JRA Journey: Wow what a difference a year makes!

Thursday, July 23, 2009

Wow what a difference a year makes!

These pics were taken about a year apart. Last year during Jacob's arthritis flare up he was losing weight like crazy. He lost maybe 10 pounds. I think he had went down to about 58 pds. This summer, flare free, he is up to about 75 pounds!! HE is feeling great and continues to do very well.

3 comments:

Erika said...: Wow he looks very healthy + happy!!! What a fun summer for him!!; July 25, 2009 at 3:39 PM
Amy Cunningham said...: WOW! I mean really...WOW! WHAT a difference!; August 1, 2009 at 4:47 PM
Jacob's Mom said...: I can't even believe how much he has grown. What I can't believe more, is that we haven't had to up on his meds with the weight.; August 1, 2009 at 8:46 PM

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Jacob's story

This blog is about my son Jacob. Jacob has Juvenile Arthritis. He was diagnosed soon after he turned 5. He is now 13 years old. His journey started with me noticing a limp and a swollen knee. We were referred to a pediatric rheumatologist soon after. Initially, Jacob just complained of his knee hurting and being stiff. He received cortisone injections in May of 2004 and was weaned off of the Naproxyn he was on, soon after. All was quiet with his arthritis until January of 2008 when his knee out of nowhere was swollen again. He had some problems with his fingers and ankles as well. He was started back on Naproxyn and scheduled for a eye exam. At his routine eye exam he was diagnosed with uveitis. Uveitis is a eye disease that is caused from Juvenile arthritis. Jacob sees a uveitis specialist in Cambridge, MA every 8 weeks. His eyes have been cell free since June 2008. He was treated with the combination of Methotrexate 17.5 mg and Humira 20mg every other week. He has not been on steroid eye drops since the springtime of 2008. Beginning in the summer of 2010 we began to taper the methotrexate. He began to take it bi-weekly. He was tapered off the med completely as of January 2011. His joints have remained relatively quiet. This past February 2011, he was found to have some stiffness/inflammation in his hip. He also continues to have a couple of swollen toes as well. He is pain free at the moment and continues to take only Humira for meds. Jacob is considered to have Extended Oligoarthritis.
UPDATE: July 22, 2011 An MRI confirms arthritis in both hips. Humira 40mg will be given weekly. He has no pain in his hips. But is having pain in his heels.
Update: December 2012 Back on "Humira. Eye flare up, knee swollen and MRI confirms again arthritis is active in his hips.
Update: Feb 2013 Failed Humira. Joints and eyes flared and he isn't responding to Med. Started Remicade Feb. 1, 2013.

Jacob's uveitis and JRA Journey

Thursday, July 23, 2009

Wow what a difference a year makes!

3 comments:

Jacob

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