Wednesday, September 16, 2009

eye appointment


Big week this week. Jacob started 5th grade. He was finally able to begin school this past Monday. He is going to a new school this year. He was very nervous to start, especially because he was starting late because of his surgery. Speaking of surgery, he is doing well, finally! It was a very rough week and a half. He was in a lot of pain. He is healing well now and almost back to normal. As far as school goes, he really likes his new school.

We just came from Jacob's six week eye appointment. He is doing well. I was so nervous about this appointment because he has been off his meds for the last four weeks due to the surgery. He just restarted them within the last few days. There were no cells present!!! He does have traces of cataracts both eyes now though. His pressures today were 14 left eye and 19 on the right.

Follow up will be in another six weeks.

Sunday, September 6, 2009

Jacob is four days out from surgery. It has been a very rough last couple of days. He pretty much has been on the couch. To say he is in pain is an understatement. He has been in agony. I have been giving him tylenol every 4 hours. It is not helping much. Today he seems to be improving slightly. The tylenol seems to help for about 3 hours then he starts asking for medication. He is in better spirits today though. Last night he had had it with the pain. He is still eating minimally. I am trying to make sure he takes in fluids so he doesn't dehydrate. Not a very easy task! Hopefully his weight does not suffer.

As far as school goes, he is yet to start! He missed his first two days last week and will miss the week this week. Also soccer starts today, not for him though!

Friday, September 4, 2009

Surgery is over

Update: The initial biopsy results came back as a tonsillitis. Nothing serious!! What a relief!


The surgery is over and we are home. Over all the surgery went very well. After everything Jacob has gone through, he is not a huge fan of being put to sleep. The surgery only took about a half hour. The doctor said that his tonsils were extremely large. A surprise he had found was that behind his right tonsil was a huge pocket of fluid. The doctor said that he must have had a really bad infection at some time.

Due to the rapid onset of his tonsillitis he is going to have a full biopsy. Tonsillitis is usually more of a chronic condition. We may hear the results today or it will be Tuesday because of the holiday.

While we were in the hospital Jacob's rheumatologist came in to see him also. He has been off his JRA meds since around August 12th. He still cannot go back on them until another week or so. They want to see him in a month.

Here are some pictures from his hospital stay:

before surgery


In the hospital room



The 8th floor roof deck playground



in the playroom at the hospital



The view from the roof deck